RT Journal
A1 Faunce TA
T1 Ethical issues in governing biobanks: Global perspectives
JF JAMA
JO JAMA
YR 2009
FD June 24
VO 301
IS 24
SP 2596
OP 2597
DO 10.1001/jama.2009.924
UL http://dx.doi.org/10.1001/jama.2009.924
AB 
Many nations are now establishing large population-based biobanks and associated human genetic research databases that combine genetic information derived from biological samples with personal data about environment, medical history, lifestyle, or genealogy. Notable examples in addition to the pioneering Icelandic Health Sector Database Project are the Karolinska Institutet (Sweden), CARTaGENE (Canada), National Heart, Lung, and Blood Institute (National Institutes of Health, United States), KORA-GEN (Germany), the Western Australian Genome Health Project (Australia), and the Centre for Integrated Genomic Medical Research (United Kingdom). There have been few texts dedicated to the regulatory issues posed by biobanks. The most obvious comparitor is Biobanks Governance in Comparative Perspective (2008, Routledge), edited by Herbert Gottweis and Alan Petersen, which focuses more on issues associated with establishing biobanks in particular countries in Europe, the United States, and Australia.