RT Journal
A1 Milstein JM, Kovar LB, Kovar LJ, Paterniti DA
T1 A path to wholeness
JF JAMA
JO JAMA
YR 2012
FD September 12
VO 308
IS 10
SP 985
OP 986
DO 10.1001/2012.jama.10425
UL http://dx.doi.org/10.1001/2012.jama.10425
AB 
I had barely completed this portion of my presentation when a visibly upset couple left the amphitheater. That afternoon they sent me an apologetic e-mail. Their firstborn infant with spina bifida had not been treated in such a loving fashion as Rose. When they heard the name of Rose's mother, Deborah, they lost their composure. Deborah was the name chosen for their daughter. The similarities, in both name and defect, prompted memories that were surprisingly raw even though 57 years had elapsed since Deborah's birth. She had survived to the age of 9 months in an institution.