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Commentary |

Toward an Outcomes-Based Health Care System: Title and subTitle BreakA View From the United Kingdom

James Mountford, MD, MPH; Charlie Davie, MD
[+] Author Affiliations

Author Affiliations: UCLPartners Academic Health Sciences Partnership, London, England.


JAMA. 2010;304(21):2407-2408. doi:10.1001/jama.2010.1751
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The core purpose of a health system should be to maximize the health of the population. When the main challenge is managing long-term conditions, maintaining health rather than delivering health care per se should be the goal.

In a comprehensive, publicly funded system like the United Kingdom's National Health Service (NHS) there is an overriding imperative to deliver maximum health benefit per pound spent. Quality, effectiveness, and efficiency are the goals. Traditionally, physicians and other health care professionals have regarded financial efficiency as outside the scope of their professionalism (indeed, often at odds with it). The concept of value—useful health outputs divided by the resources needed to achieve them—as advocated by Porter and Teisberg1 and others is relatively new and unfamiliar to many clinicians. However, the need to achieve more with less puts the need to strive for value into sharp focus. Following a decade of above-inflation increases in NHS funding, the urgent need to reduce the United Kingdom's national debt means the NHS is entering a sustained period of flat or declining funding, while demand for services continues to increase (from technological progress, an aging population, increasing expectations, and population growth). Striving for value therefore becomes an ethical imperative.2

However, to make progress on value requires being clear about what the numerator of the value equation should describe. This must be quality of care as expressed by useful health outcomes, relevant to patients. Although the principle of measuring and reporting quality is now widely accepted,3 what should be measured to drive maximum improvement in quality is far from clear. The new coalition government has a system reform agenda for the NHS in England that is focused on outcomes.4 These reforms must correct some serious shortcomings in the NHS's current approach to measuring quality, in particular:

  • 1. A focus on process and proxies, not on outcomes that matter to patients.

    To date, the dominant focus of quality measurement and reporting has been on processes and inputs to care, not on patient-relevant outcomes. Process measures can have advantages. For example, they are often easier to measure than outcomes, they require less risk adjustment, and there are many examples in which a favorable patient outcome has resulted despite a defective process (or in which an unfavorable outcome has followed a faultless process). However, undue focus on process and proxy measures can have serious and often surprising consequences. Patients may have worse outcomes as a result. For example, higher mortality in high-risk patients with type 2 diabetes was associated with aggressive intervention to achieve normal glycated hemoglobin levels.5

  • 2. Only viewing the tip of the quality iceberg.

    An English hospital's quality rating today depends largely on its standardized mortality rate and rates of hospital-acquired infection. While these measures are important, they are only part of what high-quality hospital care includes. Indeed, mortality and infection rates are irrelevant to many specialties. Furthermore, standardized mortality rates do not control adequately for severity of case mix.6 By overemphasizing outcomes that are at best marginal to the activities of many specialties, there is a risk of conveying a message that measuring quality is relevant for some, but not for the majority of health care professionals. The potential for public reporting of outcome measures to drive improvement across all care is restricted. Finding and using those quality measures that matter most to patients, comparing performance to relevant peers, and continually striving to improve results over time should be core to what clinicians do. However, the NHS focus on eliminating errors and on complying with minimum standards has not encouraged clinicians to view quality measurement and improvement as central to their professionalism.

  • 3. Focus on snapshots, not on the whole pathway.

    A less well-recognized flaw in the current approach to measuring outcomes is the episodic or “snapshot” nature of current quality measures that are designed for isolated activities within a fragmented health care system. But health, not health care, is the aim. This requires taking a longitudinal, whole-system approach to measuring and managing quality.

    For example, for patients with acute ischemic stroke, “door-to-thrombolysis time” and thrombolysis rates are key drivers of outcomes. However, these measures only describe 1 aspect of the acute phase of treatment. The stroke pathway begins with public education and ends with secondary prevention. A measurement approach is needed that enables clinicians, insurers (commissioners in the United Kingdom), and patients to be able to say with confidence whether care in one system is better than care in another system. Considering quality for the acute phase of an illness in isolation is similar to judging the quality of a vacation overall by considering only the hotel check-in process.

Many health care institutions and clinicians object that their business only encompasses a small section of the whole pathway. Although this is true, it is also precisely why a more holistic way of measuring quality is needed. A high-value health system not only deals effectively and efficiently with acute stroke, but also reduces the incidence of stroke (through risk stratification, targeted management, patient education, and primary care) and is also concerned with rehabilitation and secondary prevention. Focusing on the acute phase risks optimizing 1 part of a continuum, and missing the opportunity for prevention, which can obviate the need for expensive “rescue” care. By contrast, a whole-pathway quality measurement approach, focused on relevant outcomes, will promote working arrangements (and payment systems) better aligned with the core purpose of the health system—health, not health care.

Long-term conditions provide a particular opportunity to maximize value over time for individual patients and for the health system, since these patients experience greatest morbidity and incur the highest costs. For these patients, value is determined by summing a triad of clinical outcomes, patient-reported outcomes, and patient experience, and dividing this by the cost of care over a 1-year period. The whole-pathway approach helps focus care on maintaining health and maximizing functional status over 1 year in the patient's life.

How should whole-pathway measures be developed? One solution is to bring together patients, families, and health professionals with an end-to-end view of the pathway and to use their combined expertise to define the elements of the pathway and the small set of outcome measures that best describe success along the whole pathway.

  • 1. Population awareness of risk factors (indicating public education about stroke [for example, FAST signs highlighting the classic features of stroke and the action to take: sudden changes in Face, Arm, Speech, and Telephone for urgent medical assistance]).

  • 2. Decreased population incidence of stroke (indicating increased primary prevention and improvement in population risk factors).

  • 3. Decreased acute phase mortality and increased percentage of patients discharged direct from hyperacute stroke units to home, balanced with readmissions (indicating improved management of the acute phase of stroke).

  • 4. Improved functional status/independent living indices (indicating longer-term management and rehabilitation).

  • 5. Decreased secondary event rate and population mortality (indicating improved follow-up and secondary prevention).

  • 6. Increased patient willingness to recommend and increased treated-with-dignity scores (indicating improved patient experience).

Over the next 20 years, improving the organization of health care will have more effects on health status than new drug or technology discoveries. The potential to drive step changes in results through better organization of care (by systematically linking reliable processes to techniques of change-management) is now well described.7 However, better organization of care in particular communities is a further frontier—demanding a multidisciplinary approach of a different order not only across all specialties of health care professionals, but going beyond biomedicine to include disciplines as diverse as anthropology, sociology, and engineering.

An era of increasing financial constraint paired with greater emphasis and transparency on quality should drive a value-centered approach. To benefit patients and populations, it is imperative that the quality numerator of the value equation measures those outcomes that are most relevant to patients across whole pathways. Academic health science systems are well placed to drive such an approach.8

Corresponding Author: James Mountford, MD, MPH, 149 Tottenham Court Rd, Ste 1A Maple House, London W1T 7NF, England (james.mountford@uclpartners.com).

Financial Disclosures: None reported.

Additional Contributions: UCLPartners Academic Health Sciences Partnership is 1 of 5 Academic Health Sciences Centres chartered by the Department of Health in 2009.

We are grateful to Cyril Chantler, MD, and David Fish, MD, UCLPartners, for much useful discussion on the concepts of measuring outcomes over 1 year among individuals with long-term conditions, and on taking a whole-pathway approach to quality. Neither of these individuals received compensation in association with their contributions to this article.

Porter ME, Teisberg EO. How physicians can change the future of health care.  JAMA. 2007;297(10):1103-1111
PubMed
Chantler C, Ashton R. The purpose and limits to professional self-regulation.  JAMA. 2009;302(18):2032-2033
PubMed
General Medical Council.  Tomorrow's doctors.  September 2009. http://www.gmc-uk.org/static/documents/content/TomorrowsDoctors_2009.pdf. Accessed October 5, 2010
Secretary of State for Health.  Equity and excellence: liberating the NHS. Department of Health white paper. 2010. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/documents/digitalasset/dh_117794.pdf. Accessed October 5, 2010
Gerstein HC, Miller ME, Byington RP,  et al; Action to Control Cardiovascular Risk in Diabetes Study Group.  Effects of intensive glucose lowering in type 2 diabetes.  N Engl J Med. 2008;358(24):2545-2559
PubMed
Black N. Assessing the quality of hospitals.  BMJ. 2010;340c2066
PubMed
Swensen SJ, Meyer GS, Nelson EC,  et al.  Cottage industry to postindustrial care—the revolution in health care delivery.  N Engl J Med. 2010;362(5):e12
PubMed
Dzau VJ, Ackerly DC, Sutton-Wallace P,  et al.  The role of academic health science systems in the transformation of medicine.  Lancet. 2010;375(9718):949-953
PubMed

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Porter ME, Teisberg EO. How physicians can change the future of health care.  JAMA. 2007;297(10):1103-1111
PubMed
Chantler C, Ashton R. The purpose and limits to professional self-regulation.  JAMA. 2009;302(18):2032-2033
PubMed
General Medical Council.  Tomorrow's doctors.  September 2009. http://www.gmc-uk.org/static/documents/content/TomorrowsDoctors_2009.pdf. Accessed October 5, 2010
Secretary of State for Health.  Equity and excellence: liberating the NHS. Department of Health white paper. 2010. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/documents/digitalasset/dh_117794.pdf. Accessed October 5, 2010
Gerstein HC, Miller ME, Byington RP,  et al; Action to Control Cardiovascular Risk in Diabetes Study Group.  Effects of intensive glucose lowering in type 2 diabetes.  N Engl J Med. 2008;358(24):2545-2559
PubMed
Black N. Assessing the quality of hospitals.  BMJ. 2010;340c2066
PubMed
Swensen SJ, Meyer GS, Nelson EC,  et al.  Cottage industry to postindustrial care—the revolution in health care delivery.  N Engl J Med. 2010;362(5):e12
PubMed
Dzau VJ, Ackerly DC, Sutton-Wallace P,  et al.  The role of academic health science systems in the transformation of medicine.  Lancet. 2010;375(9718):949-953
PubMed
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