Let it come, as it will, and don'tbe afraid. God does not leave uscomfortless, so let evening come.—From "Let Evening Come," Jane Kenyon (1996)
In June 2001,1 Susan Block, MD, introduced Mr N, aged 77 years, a divorced systems analyst with end-stage pancreatic cancer metastatic to the liver and lungs; Mr N's adult son; and his treating physician, Dr S. Each described the psychological challenges, and illuminated the potential opportunities for personal growth and deepening of relationships, that the end of life offers. Careful attention to Mr N's physical symptoms and suffering made it easier to address his central concerns—about family, his own psychological integrity, and about finding meaning in his life.
Four months after Mr N's June 1999 interview, his condition worsened. Mr N called Dr S to say that he was experiencing marked anorexia and increasing weakness and was thus unable to come to outpatient clinic appointments any longer. He was ready to engage home hospice. While Dr S arranged this, his son came from his home in another state to help care for his father. Later, Mr N's ex-wife joined them.
Along with the hospice nurse, Dr S continued to see Mr N at home, initially visiting weekly, then, during the last week of his life, every other day. Mr N remained conscious, lucid, and conversant until about 36 hours prior to his death. During one of these visits, Mr N pointed out to his son the shelf of books that he and his physician had read and discussed together. Dr S admired the son's care and observed to the son that he undoubtedly would later treasure the time and effort spent in caring for his dad, noting a book he and Mr N had read whose author described the dying and the caring for the dying to be 2 halves of a whole.2
Dr S recommended to the son and ex-wife that they read 2 companion works of poetry: the final collection of poems by Jane Kenyon, entitled Otherwise (1996),3 and the response by her husband, Donald Hall, entitled Without (1998).4
Mr N's son managed his father's agonal symptoms with oral and rectal morphine, lorazepam, and atropine. Mr N died peacefully, in his own bed, as he had wished. Mr N's son, his companion, and his ex-wife later reflected upon his life and death in correspondence to Dr S.
All I can say is thank you for being in [my father's] life as his doctor and friend, and thank you for guiding him and me through his death. Reading the JAMA article I realize I had no idea what losing [Dad] would be like. I don't know that I'd change what I said, but my state of mind is certainly different. Also, I've been taking some biology classes, in part because of [him].
You were [his] anchor in a stormy sea—thank you for being there for him—in every way. He loved and admired you deeply. My heart is with you. . . .
Thank you again for all the loving care you gave to [Mr N] over the years and particularly these last months and hours. How much like [Mr N] was Jane Kenyon in her last days when she said, "Dying is simple. . . . What's worse is the separation." Exactly what he expressed, that he was content with dying, but it was leaving our son and me and his close friends who would be left to grieve—that's what concerned him. He was quite a wonderful person, wasn't he?
Recently, I walked down to the park with my friend and we sat for more than an hour on the bench that was donated by Mr N's friends. It was a fitting tribute to this special man, whom I miss so in my clinic.
These things happen . . . the soul's blissand suffering are bound togetherlike the grasses. . . .—From "Twilight: After Haying," Jane Kenyon (1996)
Country-Specific Mortality and Growth Failure in Infancy and Yound Children and Association With Material Stature
Use interactive graphics and maps to view and sort country-specific infant and early dhildhood mortality and growth failure data and their association with maternal
Instructions
Comments are moderated and will appear on the site at the discretion of the Journal of American Medical Association editors. Comments should not exceed 500 words of text and 10 references.
Do not submit personal medical questions or information that could identify a specific patient, questions about a particular case, or general inquiries to an author. Only content that has not been published, posted, or submitted elsewhere should be submitted. By submitting this Comment, you and any coauthors transfer copyright to the journal if your Comment is posted.
* = Required Field
Disclosure of Any Conflicts of Interest* Indicate all relevant conflicts of interest of each author below, including all relevant financial interests, activities, and relationships within the past 3 years including, but not limited to, employment, affiliation, grants or funding, consultancies, honoraria or payment, speakers’ bureaus, stock ownership or options, expert testimony, royalties, donation of medical equipment, or patents planned, pending, or issued. If all authors have none, check "No potential conflicts or relevant financial interests" in the box below. Please also indicate any funding received in support of this work. The information will be posted with your response.
Register and get free email Table of Contents alerts, saved searches, PowerPoint downloads, CME quizzes, and more
Subscribe for full-text access to content from 1998 forward and a host of useful features
Activate your current subscription (AMA members and current subscribers)
Some tools below are only available to our subscribers or users with an online account.
Download citation file:
Customize your page view by dragging & repositioning the boxes below.
and access these and other features:
Register Now
Enter your username and email address. We'll send you a reminder to the email address on record.
Athens and Shibboleth are access management services that provide single sign-on to protected resources. They replace the multiple user names and passwords necessary to access subscription-based content with a single user name and password that can be entered once per session. It operates independently of a user's location or IP address. If your institution uses Athens or Shibboleth authentication, please contact your site administrator to receive your user name and password.