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Editorial |

Involving Patients in Medical Decisions: Title and subTitle BreakHow Can Physicians Do Better?

Michael J. Barry, MD
JAMA. 1999;282(24):2356-2357. doi:10.1001/jama.282.24.2356
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Increasingly, clinicians are being encouraged to involve patients in their medical decisions, both diagnostic and therapeutic. Such shared decision making is particularly important when the optimal management strategy depends on the strength of patients' preferences for the different health outcomes that may result from the decision. In such a circumstance, the optimal strategy may be quite different for 2 patients with different preferences facing the same decision about a diagnostic test or course of therapy. Failure to match the treatments that patients receive with their preferences (including their attitudes toward risk) may contribute to the phenomenon of widevariations in rates of medical treatment for many conditions by geographic area,1 which suggests to some observers that physicians', rather than patients', preferences are driving these rates. Evidence of this push toward shared decision making abounds. For example, national guidelines from the American College of Physicians/American Society of Internal Medicine on questions as diverse as prostate-specific antigen (PSA) testing2 and estrogen replacement therapy3 have recommended that clinicians provide patients with information on the pros and cons of their options and help them reach an individualized decision about the right course to take.

The article by Braddock and colleagues4 in this issue of THE JOURNAL suggests physicians have not generally embraced the concept of shared decision making in day-to-day office practice. This article describes a careful analysis of audiotapes of encounters between patients and primary care physicians or surgeons in 2 states. Across a spectrum of definitions on the completeness of informed decision making, these physicians did poorly in terms of involving patients in their medical decisions. Interestingly, although surgeons as a group are sometimes characterized as paternalistic (at least by primary care physicians), the surgeons did somewhat better than the primary care physicians in terms of the proportion of their visits that met the various threshold criteria for adequate informed decision making.

Are the results of this study valid and generalizable? The robustness of the study's results as the definition of adequate shared decision making was varied, as well as the acceptable interrater agreement on these categorizations, support the study's validity. Given that the recruitment strategy appears to have oversampled physicians with 2 or more previous malpractice claims,5 which may in turn result from faulty communication styles, the generalizability of the results might well be questioned. However, the results were so extreme that it seems unlikely that a different recruitment strategy would have yielded data that would indicate widespread adoption of the shared decision-making paradigm.

Why do physicians appear to be so paternalistic in day-to-day office practice? Physicians most likely would argue that there is simply insufficient time to adopt the shared decision-making approach, particularly in the current managed care era, in which most office-based physicians feel pressured to see an increasing number of patients in the same amount of time. In fact, the encounters with primary care physicians in this study averaged about 16 minutes in duration, and a median of 3 patient concerns were tackled. In such a visit, basic history taking and a focused physical examination will usually precede a discussion about diagnostic and therapeutic options; physicians may simply tell patients what to do without much elaboration to move on to the next examination room quickly. Perhaps the surgeons studied, who dealt with fewer patient concerns in visits only slightly shorter in mean duration than those of primary care physicians, did better simply because they had more time. Alternatively, inculcation in the routine of eliciting written, informed consent before performing operations may have sensitized surgeons to the need for informed decision making.

Time is certainly a major issue in trying to incorporate shared decision making into office practice. Trying to explain, in a balanced way, the complex issues behind controversies such as whether to perform a PSA test or prescribe estrogen replacement therapy cannot be done quickly. For decisions that must be faced routinely in office practice, educational materials such as pamphlets, videotapes, or even interactive videodiscs may be helpful for communicating basic information about a decision and the possible outcomes of different management options, so that clinicians' limited time can be spent not on basic education, but on tailoring the management strategy to the patient's preferences. Several randomized trials of some decision aids have shown that they can make patients better informed about their conditions and the risks and benefits of their management options.6 For example, a 20-minute videotape on the PSA decision has not only improved patient knowledge about the PSA test, but also significantly reduced rates of PSA testing in 2 separate randomized trials.7 8 Incorporating education interventions into routine practice can be cumbersome because most offices are not set up for such an effort, particularly for anything more complicated than brochures.

Some physicians may even question whether patients want to be involved in making their personal medical decisions. Research on this question has been contradictory. Deber and colleagues9 have brought some clarity to this area by distinguishing problem-solving tasks from decision-making tasks. A problem-solving task involves getting to the one right decision in a particular situation, a solution unaffected by patient preferences, while decision making involves choosing from a number of reasonable alternatives, where the optimal choice will be preference-driven. Their research strongly suggests patients do want to participate in the latter, but not the former, tasks.9

The results of the study by Braddock and colleagues present a challenge to the medical profession. Most physicians would accept the importance of informed consent to patient management as something more than just a medical-legal necessity. If that is the case, we, as physicians, must do a better job of practicing what we preach. Physician time will be a major impediment, and new strategies, including more effective and efficient use of educational materials and decision aids in office practice, will need to be developed and tested as part of the solution.

REFERENCES

The Center for the Evaluative Clinical Sciences, Dartmouth Medical School.  The Dartmouth Atlas of Health Care 1998. Chicago, Ill: American Hospital Publishing Inc; 1998.
American College of Physicians.  Screening for prostate cancer.  Ann Intern Med.1997;126:480-484.
American College of Physicians.  Guidelines for counseling postmenopausal women about preventive hormone therapy.  Ann Intern Med.1992;117:1038-1041.
Braddock III CH, Edwards KA, Hasenberg NM, Laidley TL, Levinson W. Informed decision making in outpatient practice: time to get back to basics.  JAMA.1999;282:2313-2320.
Levinson W, Roter DL, Mullooly JP, Dull VT, Frankel RM. Physician-patient communication: the relationship with malpractice claims among primary care physicians and surgeons.  JAMA.1997;277:553-559.
O'Connor AM, Rostom A, Fiset V.  et al.  Decision aids for patients facing health treatment or screening decisions.  BMJ.1999;319:731-734.
Flood AB, Wennberg JE, Nease RF.  et al.  The importance of patient preference in the decision to screen for prostate cancer.  J Gen Intern Med.1996;11:342-349.
Volk RJ, Cass AR, Spann SJ. A randomized controlled trial of shared decision making for prostate cancer screening.  Arch Fam Med.1999;8:333-340.
Deber RB, Kraetschmer N, Irvine J. What role do patients wish to play in treatment decision-making?  Arch Intern Med.1996;156:1414-1420.

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The Center for the Evaluative Clinical Sciences, Dartmouth Medical School.  The Dartmouth Atlas of Health Care 1998. Chicago, Ill: American Hospital Publishing Inc; 1998.
American College of Physicians.  Screening for prostate cancer.  Ann Intern Med.1997;126:480-484.
American College of Physicians.  Guidelines for counseling postmenopausal women about preventive hormone therapy.  Ann Intern Med.1992;117:1038-1041.
Braddock III CH, Edwards KA, Hasenberg NM, Laidley TL, Levinson W. Informed decision making in outpatient practice: time to get back to basics.  JAMA.1999;282:2313-2320.
Levinson W, Roter DL, Mullooly JP, Dull VT, Frankel RM. Physician-patient communication: the relationship with malpractice claims among primary care physicians and surgeons.  JAMA.1997;277:553-559.
O'Connor AM, Rostom A, Fiset V.  et al.  Decision aids for patients facing health treatment or screening decisions.  BMJ.1999;319:731-734.
Flood AB, Wennberg JE, Nease RF.  et al.  The importance of patient preference in the decision to screen for prostate cancer.  J Gen Intern Med.1996;11:342-349.
Volk RJ, Cass AR, Spann SJ. A randomized controlled trial of shared decision making for prostate cancer screening.  Arch Fam Med.1999;8:333-340.
Deber RB, Kraetschmer N, Irvine J. What role do patients wish to play in treatment decision-making?  Arch Intern Med.1996;156:1414-1420.
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