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Ethical Standards for Research Biobank Donation

Edward S. Dove, BA, BCL, LLB1; Barbara Prainsack, DPhil2
[+] Author Affiliations
1J Kenyon Mason Institute for Medicine, Life Science and the Law, University of Edinburgh School of Law, Edinburgh, Scotland
2Department of Social Science, Health and Medicine, King’s College, London, England
JAMA. 2015;313(15):1573-1574. doi:10.1001/jama.2015.2748.
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To the Editor Dr Tomlinson and colleagues1 reported findings from a survey of 1599 US residents, exploring the public’s willingness to donate tissue and information to a fictional research biobank. The authors highlighted that the traditional ethical standard of specific consent to each future research study does not correspond with the actual preferences of many people. This accords with emerging consensus that specific consent is ill-suited to the nature of longitudinal biomedical research using tissues and large data sets, in which future uses of these materials are typically unforeseeable.


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April 21, 2015
Tom Tomlinson, PhD; Raymond De Vries, PhD; Scott Y. H. Kim, MD, PhD
1Center for Ethics and Humanities in the Life Sciences, Michigan State University, East Lansing
2Center for Bioethics and Social Sciences in Medicine, University of Michigan Medical School, Ann Arbor
3Department of Bioethics, National Institutes of Health, Bethesda, Maryland
JAMA. 2015;313(15):1574. doi:10.1001/jama.2015.2751.
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