Major advances in medical technology, such as chemotherapy, bone marrow transplantation, and immunotherapy, have increased survival rates and changed the lives of ill children and their families. One consequence of these advances in medical care has been that many children have experienced multiple, intensive, long-term hospitalizations. Despite pressures from insurers to shorten lengths of stay, children with serious chronic conditions can spend much of their childhood in a hospital. In 2000, approximately 2 million children and adolescents were hospitalized for pediatric illness.2 It also has been estimated that “childhood disability” accounts for 5 million hospital days each year.3 These illnesses can range from relatively common pediatric diagnoses such as sickle cell disease, severe asthma, and cystic fibrosis, to rare conditions such as immunodeficiencies, cancer, and unusual genetic syndromes. Prolonged hospitalizations, though necessary for adequate medical care, change the physical and emotional environment, disciplinary context, schooling, family life, and neurobiology of the chronically ill child.4 Thoughtful and integrated multidisciplinary care is more important today than ever before.
Some tools below are only available to our subscribers or users with an online account.
Download citation file:
Web of Science® Times Cited: 9
Customize your page view by dragging & repositioning the boxes below.
More Listings atJAMACareerCenter.com >
Care at the Close of Life EDUCATION GUIDESOvercoming the False Dichotomy of Curative vs Palliative Care for Late-Stage HIV/AIDS
All results at
Enter your username and email address. We'll send you a link to reset your password.
Enter your username and email address. We'll send instructions on how to reset your password to the email address we have on record.
Athens and Shibboleth are access management services that provide single sign-on to protected resources. They replace the multiple user names and passwords necessary to access subscription-based content with a single user name and password that can be entered once per session. It operates independently of a user's location or IP address. If your institution uses Athens or Shibboleth authentication, please contact your site administrator to receive your user name and password.