Landis SH, Murray T, Bolden S, Wingo PA. Cancer statistics, 1999. CA Cancer J Clin.1999;49:8-31.
Wolfe J, Grier HE, Klar N.
et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med.2000;342:326-333.
Weeks JC, Cook EF, O'Day SJ.
et al. Relationship between cancer patients' predictions of prognosis and
their treatment preferences. JAMA.1998;279:1709-1714.
Rothenbacher D, Lutz MP, Porzsolt F. Treatment decisions in palliative cancer care: patients' preferences
for involvement and doctors' knowledge about it. Eur J Cancer.1997;33:1184-1189.
Tulsky JA, Chesney MA, Lo B. How do medical residents discuss resuscitation with patients? J Gen Intern Med.1995;10:436-442.
A controlled trial to improve care for seriously ill hospitalized patients:
the Study to Understand Prognoses and Preferences for Outcomes and Risks of
Treatments (SUPPORT). JAMA.1995;274:1591-1598. [published erratum appears in JAMA. 1996;275:1232].
Pronzato P, Bertelli G, Losardo P, Landucci M. What do advanced cancer patients know of their disease? a report from
Italy. Support Care Cancer.1994;2:242-244.
Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: the experience
of patients and their caregivers. Ann Intern Med.2000;132:451-459.
Eidinger RN, Schapira DV. Cancer patients' insight into their treatment, prognosis, and unconventional
Ross LF. Health care decisionmaking by children: is it in their best interest? Hastings Cent Rep.1997;27:41-45.
Shelton TL. Family-centered care in pediatric practice: when and how? J Dev Behav Pediatr.1999;20:117-119.
Lewis C, Knopf D, Chastain-Lorber K.
et al. Patient, parent, and physician perspectives on pediatric oncology rounds. J Pediatr.1988;112:378-384.
Saunders CM. A comparison of adult bereavement in the death of a spouse, child,
and parent. Omega.1979-1980;10:302-322.
James L, Johnson B. The needs of parents of pediatric oncology patients during the palliative
care phase. J Pediatr Oncol Nurs.1997;14:83-95.
Mauer AM. The concept of cure in pediatric oncology: altered realities. Am J Pediatr Hematol Oncol.1987;9:58-61.
Emanuel EJ, Fairclough DL, Daniels ER, Clarridge BR. Euthanasia and physician-assisted suicide: attitudes and experiences
of oncology patients, oncologists, and the public. Lancet.1996;347:1805-1810.
Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their
Development and Use. 2nd ed. New York, NY: Oxford Medical Publications; 1995.
Rosner B. Fundamentals of Biostatistics. 4th ed. Boston, Mass: Duxbury Press; 1995.
Liang KY, Zeger SL. Longitudinal data analysis using generalized linear models. Biometrika.1986;73:13-22.
Pyke-Grimm KA, Degner L, Small A, Mueller B. Preferences for participation in treatment decision making and information
needs of parents of children with cancer: a pilot study. J Pediatr Oncol Nurs.1999;16:13-24.
Billings JA. What is palliative care? J Palliat Med.1998;1:73-82.
Cancer care during the last phase of life. J Clin Oncol.1998;16:1986-1996.
Good care of the dying patient: Council on Scientific Affairs, American
Medical Association. JAMA.1996;275:474-478.
Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA.1999;281:163-168.
Masera G, Spinetta JJ, Jankovic M.
et al. Guidelines for assistance to terminally ill children with cancer: a
report of the SIOP Working Committee on psychosocial issues in pediatric oncology. Med Pediatr Oncol.1999;32:44-48.
Frager G. Pediatric palliative care: building the model, bridging the gaps. J Palliat Care.1996;12:9-12.
Houston K, Petronis K, Denham K, Kosier M. An interdisciplinary approach to inpatient palliative care. Continuum.1995;15:9-16.
Schroeder MR. Guidelines for care of the dying patient: an interdisciplinary effort. Continuum.1997;17:1, 3-10.
Cherny NI, Coyle N, Foley KM. Guidelines in the care of the dying cancer patient. Hematol Oncol Clin North Am.1996;10:261-286.
Guidelines for the pediatric cancer center and role of such centers
in diagnosis and treatment: American Academy of Pediatrics Section Statement
Section on Hematology/Oncology. Pediatrics.1997;99:139-141.