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Quantifying a Nonnotifiable Disease in the United States:  The National Amyotrophic Lateral Sclerosis Registry Model

D. Kevin Horton, DrPH, MSPH1; Paul Mehta, MD1; Vinicius C. Antao, MD, MSc, PhD1
[+] Author Affiliations
1Agency for Toxic Substances and Disease Registry, Atlanta, Georgia
JAMA. 2014;312(11):1097-1098. doi:10.1001/jama.2014.9799.
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Public health surveillance is an essential tool for assessing, controlling, and preventing disease. In the United States, public health surveillance has evolved from a focus on monitoring infectious diseases to also tracking injuries, chronic diseases, birth defects, environmental and occupational exposures, and risk factors.1 Despite this evolution of surveillance topics, many conditions still are not notifiable to federal public health officials nor are there surveillance systems in place to capture such conditions. The lack of morbidity data for nonnotifiable conditions makes it difficult to access accurately the populations at greatest risk and the true economic and societal burden of such diseases. New approaches are needed to more accurately quantify nonnotifiable conditions of interest in the United States, such as amyotrophic lateral sclerosis (ALS).

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The American Medical Association is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The AMA designates this journal-based CME activity for a maximum of 1 AMA PRA Category 1 CreditTM per course. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Physicians who complete the CME course and score at least 80% correct on the quiz are eligible for AMA PRA Category 1 CreditTM.
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