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Letters |

Participating in Biomedical Research

Tia Powell, MD; Bruce D. Rapkin, PhD; Elisa S. Weiss, PhD
JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1719.
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To the Editor: Mr Schaefer and colleagues1 hold that individuals have a moral obligation to participate in research. We contend that assigning this obligation to the individual will fail to increase participation, particularly among ethnic minorities. Moreover, focusing on the role of individuals shifts attention away from the failed responsibilities of important social institutions and their leaders.

The authors do not address vast differences in access to health care. Individuals who do not enjoy the benefits of medical care and research will not accept an obligation to improve treatments for others. The failure of the United States to provide universal access to care stands as the greatest single flaw in any attempt to find a universal obligation for research participation. Until this is remedied, vulnerable individuals cannot be saddled with group responsibility.

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References

November 25, 2009
Sarah M. Greene, MPH; Kathleen M. Mazor, EdD; Thomas H. Gallagher, MD
JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1717.
November 25, 2009
Kenneth A. Katz, MD, MSc, MSCE
JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1718.
November 25, 2009
Morenike Oluwatoyin Folayan, BChD, MBA; Lillian Mutengu-Kasirye, BA; Gabriela Calazans, MA
JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1720.
November 25, 2009
G. Owen Schaefer, BA; Ezekiel J. Emanuel, MD, PhD; Alan Wertheimer, PhD
JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1721.
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