We're unable to sign you in at this time. Please try again in a few minutes.
We were able to sign you in, but your subscription(s) could not be found. Please try again in a few minutes.
There may be a problem with your account. Please contact the AMA Service Center to resolve this issue.
Contact the AMA Service Center:
Telephone: 1 (800) 262-2350 or 1 (312) 670-7827  *   Email: subscriptions@jamanetwork.com
Error Message ......
Commentary | Clinician's Corner

Management of Diseases Without Current Treatment Options Something Can Be Done

Ava K. Kiser, OD; Peter J. Pronovost, MD, PhD
JAMA. 2009;301(16):1708-1709. doi:10.1001/jama.2009.506.
Text Size: A A A
Published online


After being diagnosed with a disabling, chronic disease, such as some retinal diseases and neurodegenerative diseases, there is nothing more disheartening than for the patient to hear that nothing can be done to treat it. Tragically, some diseases still lack a medical treatment to slow, stop, or reverse their course. In addition, even when therapy is available to treat a chronic disease, some patients are often left with distressing symptoms. Research to alleviate these symptoms has received relatively little attention, and physicians struggle with how to provide care for these patients. Studies are needed to understand and mitigate patients' disease-related symptoms that often result in significant distress, morbidity, and reduced quality of life. In this Commentary, we discuss research that is based on patient feedback and focused on investigating the concerns pertinent to patients.

Sign in

Purchase Options

• Buy this article
• Subscribe to the journal
• Rent this article ?

First Page Preview

View Large
First page PDF preview





You need to register in order to view this quiz.


Some tools below are only available to our subscribers or users with an online account.

0 Citations

Sign in

Purchase Options

• Buy this article
• Subscribe to the journal
• Rent this article ?

Related Content

Customize your page view by dragging & repositioning the boxes below.

Articles Related By Topic
Related Collections
PubMed Articles

Users' Guides to the Medical Literature
Qualitative Research

Users' Guides to the Medical Literature
Are the results credible?