Creation of a new US registry for sudden death in young individuals from conditions such as epilepsy and heart disease is under way to help researchers define the scope of the problem, develop better diagnostic and prevention approaches, and set future research priorities. The initiative, the Sudden Death in the Young Registry, is spearheaded by the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC).
The registry will track all sudden unexpected death in youths up to age 24 years (to include college-aged youths), expanding the CDC’s Sudden Unexpected Infant Death Case Registry, which currently tracks sudden unexpected deaths in children during the first year of life in 9 states. The new registry will track sudden unexpected deaths that may be due to underlying medical causes in as many as 15 states or major metropolitan areas. Suicide, homicide, and trauma deaths will not be tracked.
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