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Letters |

Knowledge of Ethical Standards in Genetic Testing Among Medical Students, Residents, and Practicing Physicians

Laurie A. Demmer, MD; Mary J. O'Neill, MD; Amy E. Roberts, MD; Marjorie C. Clay, PhD
JAMA. 2000;284(20):2595-2596. doi:10.1001/jama.284.20.2591.
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To the Editor: As genetic technology evolves, physicians will find themselves called on to counsel patients about a rapidly increasing number of diseases for which genetic testing is available. The increased availability of testing raises new and complex ethical issues. Lack of familiarity with these issues may lead to profound and lifelong negative effects on patients, particularly children.

American Society of Human Genetics Board of Directors and The American College of Medical Genetics Board of Directors, Points to consider: ethical, legal and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet. 1995;57:1233-1241.
 Genetic testing for cystic fibrosis: National Institutes of Health Consensus Development Conference Statement on Genetic Testing for Cystic Fibrosis. Arch Intern Med. 1999;159:1529-1539.
International Huntington Association (INA) and the World Federation of Neurology (WFN) Research Group on Huntington's Chorea, Guidelines for the molecular genetics predictive test in Huntington's Disease. Neurology. 1994;44:1533-1536.
Bloch  MHayden  M Opinion: predictive testing for Huntington disease in childhood: challenges and implications. Am J Hum Genet. 1990;46:1-4.
Feitshans  IL Genetics: legislating to preserve women's autonomy during pregnancy. Med Law. 1995;14:397-412.
Schenker  JGEisenberg  VH Ethical issues related to reproduction control and women's health. Int J Gynaecol Obstet. 1995;58:167-176.


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